Julie Flygare, JD

Narcolepsy Advocate and Blogger

Julie Flygare, JD is a leading narcolepsy spokesperson, published author, blogger and runner diagnosed with narcolepsy and cataplexy in 2007. She received her Bachelor of Arts Degree from Brown University in 2005 and her Juris Doctor from Boston College Law School in 2009. 

Upon recognizing that many doctors were unfamiliar with narcolepsy, Julie collaborated with Harvard Medical School researchers in 2009 to establish a 5-hour educational program based on her story now taught to all Harvard Medical School students.

Julie has spoken about narcolepsy to scientific researchers, doctors, nurses, Harvard Medical students, NIH, FDA and CDC government officials and the general public. Her story has been featured by Marie Claire Magazine, ABC News, NBC Universal, Sirius XM Radio and the Discovery Channel. 

In 2010, Julie established the NATIONAL SLEEP WALK in Washington DC and received the National Public Awareness Award from Narcolepsy Network.  In December 2012, she published “Wide Awake and Dreaming: A Memoir of Narcolepsy,” which won First Place in the 2013 San Francisco Book Festival Award for Biography/Autobiography. 

Julie currently lives in Los Angeles, CA and serves on NIH’s Sleep Disorder Research Advisory Board. In 2012 – 2013, Julie led efforts to successfully secure narcolepsy’s place in FDA’s Patient Focused Drug Development Initiative.  Most recently, she created the NARCOLEPSY: NOT ALONE international awareness campaign to prove narcolepsy is REAL and we are NOT ALONE.