Melissa Hogan

Advocate, SavingCase blogger

Melissa Hogan is a lawyer by profession, writer by passion, and advocate by necessity.

In 2009, when her 2-year-old son Case was diagnosed with Hunter Syndrome (MPS II), an ultra rare lysosomal storage disorder, Melissa's experience as a lawyer and consultant helped her effectively navigate the challenges many rare disease families face with insurance, education, and health care. When her son entered a clinical trial in 2011, the experience brought her full circle and she began to write on topics relevant to rare disease families and industry, such as advocacy, medical research, pharma, clinical trials, social media, therapies, and special education on, a blog read in over 100 countries. She also speaks on these topics, advocates for families, and uses other social media strategies to raise awareness and make a difference in the lives of rare disease families. She also serves on the Advisory Board for the Mayo Clinic Center for Social Media.

Most recently, she practiced as a management consultant with KermaPartners, advising law firms and legal networks on global strategy. Prior to that, she practiced as a corporate and securities attorney in Nashville, Tennessee, taught legal writing and health care regulatory law, and served as a law clerk on the U.S. Court of Appeals for the Sixth Circuit.

She holds a J.D., magna cum laude, with an emphasis in health law from the University of Pittsburgh School of Law.

She is the author of the e-book Calmer: Medical Events with Cognitively Impaired Children (2012) which shares strategies for preventing medical trauma in children with chronic medical conditions.

For more information, visit or you can reach Melissa via Twitter @savingcase.