International Patients' Organizations Seeking an Expanded Role

International Patients' Organizations Seeking an Expanded Role

05.17.11 | By

I want to bring to your attention an interesting story about how the role of patients and patient support organizations are coming to play a bigger role in global health decision-making. It comes out of the World Health Organization (WHO) World Health Assembly in Geneva, Switzerland, where, at a side meeting, the International Alliance of Patients' Organizations (IAPO) along with two of its member groups - Alzheimer's Disease International (ADI) and the Multiple Sclerosis International Federation (MSIF) - called for patients having a "stronger role in setting the agenda in the design and delivery of strategies to prevent and manage non-communicable and chronic diseases."

The aim of this effort was crystallized by Jose M. Martin-Moreno, Director, Programme Management of WHO Regional Office for Europe, who said: 'Policy-making in health matters should involve the patient voice for the benefit of all. Within health systems we should not compete but ensure that we prevent the preventable, diagnose early, take care of those with a disease and give dignity to those at the end of life. Patients have an important role to play in achieving these goals.'

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