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Volunteer Health Agencies

Allergy and Asthma Network Mothers of Asthmatics
8201 Greensboro Drive, Suite, 300 McLean, VA 22102
Phone: (800) 878-4403
Fax: (703) 288-5271
Website: www.aanma.org

Alliance for Aging Research 
2021 K Street, N.W., Suite 305 Washington, DC 20006
Phone: (202) 293-2856
Fax: (202) 785-8574
 
Debbie Zeldow, Executive Vice President
Office: (202) 293-2865, ext. 115 E-Mail: dzeldow@agingresearch.org
 
The ALS Association 
Media Relations
1275 K Street NW, Suite 1050 Washington, DC 20005
Phone: (818) 880-9007, ext. 243
Website: www.alsa.org
 
Alzheimer’s Association 
225 North Michigan Avenue, 17th Floor Chicago, IL 60601-7633
Phone: (312) 335-8700; (800) 272-3900
PR Department Phone: (312) 335-4078
PR Department Fax: (866) 720-0074
Website: www.alz.org 
 
American Autoimmune Related Diseases Association (Autoimmune Diseases Association) 
22100 Gratiot Avenue East Detroit, MI 48201
Phone: (586) 776-3900
Fax: (586) 776-3903
Website: www.aarda.org
 
Virginia Ladd 
 
American Brain Tumor Association 
2720 River Road, Suite 146 Des Plaines, IL. 60018
Phone: (847) 827-9910
Fax: (847) 827-9918
 
Sheryl Cash, Communications Manager
Office: (224) 220-2786 Cell: (847) 804-7486 E-Mail: scash@abta.org
 
American Cancer Society 
National Home Office 
250 Williams Street Atlanta, GA 30303
 
Atlanta Office Jamie Kimbrough, Director, Media Relations 
Office: (404) 417-5889 Cell: (404) 449-3008 E-Mail: jamie.kimbrough@cancer.orgjamie.kimbrough@cancer.org "> 
 
Busola Afolabi, Manager, Media Relations
Office: (404) 417-5894 Cell: (678) 458-0684 E-Mail: busola.afolabi@cancer.org
 
Claire Greenwell, Media Relations Specialist
Office: (404) 417-5883 Cell: (678) 592-9517 E-Mail: claire.greenwell@cancer.org
 
New York Office Andrew Becker, Director, Media Relations
Office: (212) 237-3899 Cell: (917) 673-7728 E-Mail: andrew.becker@cancer.org
 
Los Angeles Office David Sampson, Director, Medical & Scientific Communications 
Office: (213) 368-8523 Cell: (213) 840-7525 E-Mail: david.sampson@cancer.org
 
Advocacy, Washington, DC Office Steve Weiss, Senior Director, Communications and Media 
Office: (202) 661-5711 Cell: (202) 607-0911 E-Mail: steve.weiss@cancer.org 
 
Alissa Havens, Senior Manager, Media Advocacy
Office: (202) 661-5772 Cell: (202) 905-1300 E-Mail: alissa.havens@cancer.org 
 
American Diabetes Association 
1701 North Beauregard Street Alexandria, VA 22311
Phone: (703) 549-1500 or 800-DIABETES
Fax: (703) 549-6294
 
American Heart Association 
Corporate and Media Communications 
7272 Greenville Avenue Dallas, TX 75231
Phone: (214) 706-1396 or 800-AHA-USA-1
Fax: (214) 706-5243
 
Cathy Lewis, Senior Communications Manager, Consumer Health News
 
Julie Del Barto, Senior Communications Manager, Multimedia Strategies
Office: (214) 706-1330 E-Mail: julie.delbarto@heart.org 
 
Darcy Spitz, Senior Communications Manager, New York 
Office: (212) 878-5940 Fax: (212) 878-5960 E-Mail: darcy.spitz@heart.org 
 
American Kidney Fund 
6110 Executive Boulevard, Suite 1010 Rockville, MD 20852
Phone: (301) 881-3052; (800) 638-8299
Fax: (301) 881-0898
 
Tamara Ruggiero, Vice President of Public Affairs 
Office: (301) 984-6657 E-Mail: truggiero@kidneyfund.org
 
American Liver Foundation 
39 Broadway, Suite 2700 New York, NY 10006
Phone: (212) 668-1000; (800) 465-4837
Fax: (212) 483-8179
 
American Lung Association 
1301 Pennsylvania Ave., N.W., Suite 800 Washington, DC 20004
Phone: (202) 785-3355; (800) 586-4872
Fax: (202) 452-1805
 
Catherine Sebold 
Office: (202) 715-3450 E-Mail: csebold@lungusa.org
 
American Parkinson Disease Association 
135 Parkinson Avenue Staten Island, NY 10305
Phone: (800) 223-2732; (718) 981-8001
Fax: (718) 981-4399
 
amfAR: The Foundation for AIDS Research 
120 Wall Street, 13th Floor New York, NY 10005-3908
Phone: (212) 806-1600
Fax: (212) 806-1601
 
Cub Barrett, Manager, Program Communications 
Office: (212) 806-1602 E-Mail: cub.barrett@amfar.org 
 
Arthritis Foundation 
National Office 
1330 West Peachtree Street, N.W., Suite 100 Atlanta, GA 30309-2904
Phone: (404) 872-7100
Fax: (404) 872-8694
 
Ken Durden 
Office: (404) 965-7802 E-Mail: kdurden@arthritis.org 
 
Carol Galbreath 
Office: (404) 965-7595 E-Mail: cgalbreath@arthritis.org 
 
Asthma and Allergy Foundation of America 
8201 Corporate Drive, Suite 1000 Landover, MD 20785
Phone: (202) 466-7643
Fax: (202) 466-8940
 
Mike Tringale, M.S.M., Vice President of External Affairs 
Office: (202) 466-7643, ext. 272 E-Mail: mike@aafa.org
 
Brain Injury Association of America 
1608 Spring Hill Road, Suite 110 Vienna, VA 22182
Phone: (703) 761-0750; (800) 444-6443
Fax: (703) 761-0755
 
Cancer Research Institute 
National Headquarters 
One Exchange Plaza 55 Broadway, Suite 1802 New York, NY 10006
Phone: (212) 688-7515; (800) 992-2623
Fax: (212) 832-9376
 
Jill O'Donnell¬Tormey, Ph.D., Executive Director
 
Crohn’s and Colitis Foundation of America 
386 Park Avenue South, 17th Floor New York, NY 10016
Phone: (800) 932-2423
Fax: (212) 779-4098
Website:www.ccfa.org "> www.ccfa.org 
 
Ariella Levine 
Office: (646) 943-7430 E-Mail: alevine@ccfa.org 
 
Cystic Fibrosis Foundation 
6931 Arlington Road, 2nd Floor Bethesda, MD 20814
Phone: (301) 951-4422; (800) 344-4823
Fax: (301) 951-6378
E-Mail: info@cff.org
Website: www.cff.org
 
Laurie Fink, Director of Media Relations
Office: (301) 841-2602 E-Mail: lfink@cff.org
 
Depression and Bipolar Support Alliance (DBSA) 
730 North Franklin Street, Suite 501 Chicago, IL 60654-7225
Phone: (312) 642-0049; (800) 826-3632
Fax: (312) 642-7243
 
Easter Seals 
233 South Wacker Drive, Suite 2400 Chicago, IL 60606
Phone: (800) 221-6827
Fax: (312) 726-1494
 
Kristen Barnfield 
Office: (312) 551-7147 E-Mail: kbarnfield@easterseals.com
 
Sara Brewster 
Office: (312) 551-7141 E-Mail: sbrewster@easterseals.com 
 
Epilepsy Foundation 
8301 Professional Place Landover, MD 20785-7223
Phone: (301) 459-3700; (800) 332-1000
Fax: (301) 577-2684
 
Kimberli Meadows 
Office: (301) 918-3747 Cell: (301) 520-6656 E-Mail: kmeadows@efa.org 
 
Kisha James 
Office: (301) 918-3768 E-Mail: kjames@efa.org 
 
First Candle/SIDS Alliance 
1314 Bedford Avenue, Suite 210 Baltimore, MD 21208
Phone: (800) 221-7437; (410) 653-8226
 
Laura L. Reno 
Office: (313) 885-6095 Cell: (313) 268-5298 E-Mail: laura.reno@firstcandle.org 
 
Foundation Fighting Blindness 
7168 Columbia Gateway Drive, Suite 100 Columbia, MD 21046
Phone: (410) 423-0600; (800) 683-5555
Fax: (410) 872-0438
 
Angela Vasquez 
Office: (410) 423-0631 E-Mail: avasquez@fightblindness.org 
 
GBS/CIDP Foundation International -- Guillain-Barré Syndrome/Chronic Inflammatory Demyelinating Polyneuropathy 
The Holly Building 104 1/2 Forrest Avenue Narberth, PA 19072
Phone: (610) 667-0131
Fax: (610) 667-7036
 
Estelle Benson, Founding Director 
 
Glaucoma Research Foundation 
251 Post Avenue, Suite 600 San Francisco, CA 94108
Phone: (415) 986-3162; (800) 826-6693
Fax: (415) 986-3763
 
Hepatitis Foundation International 
504 Blick Drive Silver Spring, MD 20904
Phone: (301) 622-4200
Fax: (301) 622-4702
 
Thelma King Thiel, Chairman and CEO 
Office: (301) 622-4200 Home: (301) 625-9076 E-Mail: TKT@comcast.net 
 
Huntington’s Disease Society of America 
505 Eighth Avenue, Suite 902 New York, NY 10018
Phone: (212) 242-1968; (800) 345-HDSA
Fax: (212) 239-3430
 
Louise Vetter, Chief Executive Officer 
Office: (212) 242-1968, ext. 220 E-Mail: lvetter@hdsa.org 
 
Fred Taubman, Director of Marketing Development  and Communications Office: (212) 242-1968, ext. 229 E-Mail: ftaubman@hdsa.org 
 
The International Foundation for Research and Education on Depression 
P.O. Box 17598 Baltimore, MD 21297-1598
Phone: (410) 268-0044
Fax: (443) 782-0739
E-Mail: info@ifred
 
Interstitial Cystitis Association 
100 Park Avenue, Suite 108A Rockville, MD 20850
Phone: (301) 610-5300; (800) HELP-ICA
Fax: (301) 610-5308
 
Juvenile Diabetes Research Foundation International 
26 Broadway, 14th Floor New York, NY 10004
Phone: (800) 533-2873
Fax: (212) 785-9595
 
Maria Joana Casas, National Manager of Media Relations
Office: (212) 479-7560 Cell: (917) 574-6122 E-Mail: mcasas@jdrf.org
 
Kidney Cancer Association 
1234 Sherman Avenue, Suite 203 Evanston, IL 60202-1375
Phone: (847) 332-1051
Fax: (847) 332-2978
 
William P. Bro 
Office: (847) 332-1051, ext. 105 E-Mail: bbro@kidneycancer.org
 
The Leukemia & Lymphoma Society 
1311 Mamaroneck Avenue White Plains, NY 10605
Phone: (914) 949-5213
Fax: (914) 949-6691
Website: www.lls.org 
 
Nancy Klein, Chief Marketing & Revenue Officer 
Office: (914) 821-8812 E-Mail:nancy.klein@lls.org "> nancy.klein@lls.org 
 
Andrea Greif, Director, Public Relations 
Office: (914) 821-8958 E-Mail: andrea.greif@lls.org 
 
Lupus Foundation of America 
2000 L Street, N.W., Suite 710 Washington, DC 20036
Phone: (202) 349-1155
Fax: (202) 349-1156
Website: www.lupus.org
 
Mary T. Crimmings, Vice President, Marketing, Communications and Advocacy 
Office: (202) 349-1149 E-Mail: crimmings@lupus.org 
 
Duane Peters, Senior Director, Communications 
Office: (202) 349-1145 E-Mail: peters@lupus.org 
 
Maggie Maloney, Senior Marketing and Communications Specialist 
Office: (202) 212-6766 E-Mail: maloney@lupus.org
 
March of Dimes 
1275 Mamaroneck Avenue White Plains, NY 10605
Phone: (914) 997-4488
Fax: (914) 997-4585
 
Michele Kling, Director, Media Relations 
Office: (914) 997-4613 Cell: (914) 843-9487 E-Mail: mkling@marchofdimes.com 
 
Elizabeth Lynch, Manager, Print Media Relations 
Office: (914) 997-4286 Cell: (914) 953-1089 E-Mail: elynch@marchofdimes.org 
 
Todd P. Dezen, Associate Director, Media Relations 
Office: (914) 997-4608 Cell: (914) 843-1068 E-Mail: tdezen@marchofdimes.com 
 
Mental Health America 
2000 N. Beauregard Street, 6th Floor Alexandria, VA 22311
Phone: (703) 684-7722; (800) 969-6642
TTY: (800) 433-5959
Fax: (703) 684-5968
 
Steve Vetzener, Senior Director of Media Relations 
Office: (703) 797-2588 E-Mail: svetzener@mentalhealthamerica.net 
 
Muscular Dystrophy Association 
3300 E. Sunrise Drive Tucson, AZ 85718
Phone: (520) 529-2000; (800) 572-1717
Fax: (520) 529-5383
 
Jim Brown 
Office: (520) 529-5317 E-Mail: jbrown@mdausa.org
 
Myasthenia Gravis Foundation of America 
355 Lexington Avenue, 15th Floor New York, NY 10017
Phone: (212) 297-2156; (800) 541-5454
Fax: (212) 370-9047
 
Tor Holtan, Chief Executive Officer
 
National Alliance on Mental Illness (NAMI) 
3803 N. Fairfax Dr., Ste. 100 2107 Wilson Boulevard, Suite 300 Arlington, VA 22203
Phone: (703) 524-7600
Fax: (703) 524-9094
Website: www.nami.org 
 
The National Caucus and Center on Black Aged 
1220 L Street, N.W., Suite 800 Washington, DC 20005
Phone: (202) 637-8400
Fax: (202) 347-0895
 
Karyne Jones, President and CEO 
Office: (202) 637-8400, ext. 111 E-Mail: kjones@ncba¬aged.org 
 
National Council on Aging 
1901 L Street, N.W., 4th Floor Washington, DC 20036
Phone: (202) 479-1200
Fax: (202) 479-0735
 
John Beilenson, Media Consultant 
Office: (610) 687-5495 E-Mail: jbeilenson@aboutscp.com 
 
Connie Hofmann, Media Consultant
Office: (610) 687-5495 E-Mail: chofmann@aboutscp.com
 
National Down Syndrome Society 
666 Broadway, 8th Floor New York, NY 10012
Phone: (212) 763-4369; (800) 221-4602
Fax: (212) 979-2873
 
National Family Caregivers Association 
10400 Connecticut Avenue, Suite 500 Kensington, MD 20895-3944
Phone: (301) 942-6430
Fax: (301) 942-2302
 
Deborah Halpern 
 
National Foundation for Infectious Diseases 
4733 Bethesda Avenue, Suite 750 Bethesda, MD 20814
Phone: (301) 656-0003
Fax: (301) 907-0878
Website: www.nfid.org
 
Leonard Novick, Executive Director
 
National Health Council 
1730 M Street, N.W., Suite 500 Washington, DC 20036
Phone: (202) 785-3910
Fax: (202) 785-5923
 
Nancy Hughes 
Office: 202-973-0550 E-Mail: nhughes@nhcouncil.org 
 
National Hemophilia Foundation 
116 West 32nd Street, 11th Floor New York, NY 10001
Phone: (212) 328-3700
Fax: (212) 328-3777
 
John Indence, Vice President for Marketing & Communications 
 
National Kidney Foundation 
30 East 33rd Street New York, NY 10016
Phone: (212) 889-2210; (800) 622-9010
Fax: (212) 689-9261
 
National Multiple Sclerosis Society 
733 Third Avenue, 3rd Floor New York, NY 10017-3288
Phone: (212) 986-3240
Fax: (212) 986-7981
 
Arney Rosenblat 
Office: (212) 476-0436 E-Mail: arney.rosenblat@nmss.org 
 
National Organization for Rare Disorders (NORD) 
55 Kenosia Avenue 
P.O. Box 1968 Danbury, CT 06813-1968
Phone: (203) 744-0100
Fax: (203) 798-2291
 
DC Office 
1779 Massachusetts Avenue, N.W., Suite 500
Washington, DC 20036
Phone: (202) 588-5700
Fax: (202) 588-5701 
 
Peter Saltonstall, President
 
Mary Dunkle, Vice President of Communications
 
Diane Dorman, Vice President of Public Policy
 
National Osteoporosis Foundation 
1150 17th Street N.W., Suite 850 Washington, DC 20036
Phone: (202) 223-2226
Fax: (202) 223-2237
Website: www.nof.org
 
National Parkinson Foundation 
1501 N.W. Ninth Avenue/Bob Hope Road Miami, FL 33136-1494
Phone: (305) 243-6666; (800) 327-4545
Fax: (305) 243-6073
 
Leilani Pearl 
Office: (305) 243-7951 E-Mail: lpearl@parkinson.org
 
National Prostate Cancer Coalition 
10 G Street, NE, Suite 601 Washington, DC 20002
Phone: (202) 463-9455; (888) 245-9455
Fax: (202) 463-9456
 
Jamie Bearse 
 
National Psoriasis Foundation 
6600 S.W. 92nd Avenue, Suite 300 Portland, OR 97223
Phone: (800) 723-9166
Fax: (503) 245-0626
 
Catie Coman, Director of Communications 
Office: (503) 244-7404 ext. 367 E-Mail: ccoman@psoriasis.org
 
National Stroke Association 
9707 E. Easter Lane, Suite B Englewood, CO 80112-3747
Phone: (303) 649-9299
Hotline: (800) 787-6537
Fax: (303) 649-1328
 
Taryn Fort 
Office: (303) 754-0919 Home: (720) 273-0927 E-Mail: tfort@stroke.org 
 
The Paget Foundation for Paget’s Disease of Bone and Related Disorders 
120 Wall Street, Suite 1602 New York, NY 10005-4001
Phone: (212) 509-5335
Fax: (212) 509-8492
Website: www.paget.org
 
Charlene Waldman, Executive Director 
 
Parkinson's Disease Foundation
1359 Broadway, Suite 1509 New York, NY 10018
Phone: (212) 923-4700; (800) 457-6676
Fax: (212) 923-4778
E-Mail: info@pdf.org
Website: www.pdf.org 
 
Christiana Evers, Director of Communications
 
Prevent Blindness America 
211 W. Wacker Drive, Suite 1700 Chicago, IL 60606
Phone: (312) 363-6001; (800) 331-2020
Fax: (312) 363-6052
 
Andrea Densham, Vice President, Public Health and Government Affairs
Office: (312) 363-6032 Cell: (773) 343-9916 E-Mail: adensham@preventblindness.org 
 
Jeff Todd, Chief Operating Officer 
Office: (312) 363-6026 E-Mail: jtodd@preventblindness.org 
 
Pulmonary Hypertension Association 
801 Roeder Road, Suite 1000 Silver Spring, MD 20910
Phone: (301) 565-3004
Fax: (301) 565-3994
 
Katherine Kroner 
Phone: (301) 565-3004 ext. 749 E-Mail: katherine@phassociation.org 
 
Sickle Cell Disease Association of America, Inc.
231 East Baltimore Street, Suite 800 Baltimore, MD 21202
Phone: (410) 528-1555; (800) 421-8453
Fax: (410) 528-1495
 
The Skin Cancer Foundation 
149 Madison Avenue, Suite 901 New York, NY 10016
Phone: (212) 725-5176
Fax: (212) 725-5751
 
Erin Mulvey, Director, Communications 
Office: (212) 725-5176, ext. 106 E-Mail: emulvey@skincancer.org
 
Spina Bifida Association 
4590 MacArthur Boulevard, N.W., Suite 250 Washington, DC 20007-4226
Phone: (202) 944-3285; (800) 621-3141
Fax: (202) 944-3295
 
Tuberous Sclerosis Alliance 
801 Roeder Road, Suite 750 Silver Spring, MD 20910
Phone: (301) 562-9890; (800) 225-6872
Fax: (301) 562-9870
 
Jaye D. Isham 
Office: (301) 562-9890 E-Mail: jisham@tsalliance.org
 
United Cerebral Palsy (UCP)
1660 L Street, N.W., Suite 700 Washington, DC 20036
Phone: (202) 776-0406
Fax: (202) 776-0414
Website: www.ucp.org
 
Lauren Cozzi 
Office: (202) 973-7114 E-Mail: lcozzi@ucp.org