PHRMA

Volunteer Health Agencies

Allergy & Asthma Network Mothers of Asthmatics
2751 Prosperity Avenue, Suite 150
Fairfax, VA 22031
Phone: (800) 878-4403
Fax: (703) 573-7794
Web Site: www.aanma.org

Sherry MacDonald, Managing Editor
Email: smacdonald@aanma.org


Alliance for Aging Research
2021 K Street, N.W., Suite 305
Washington, DC 20006
Phone: (202) 293-2856
Fax: (202) 785-8574
E-Mail: press@agingresearch.org
Web Site: www.agingresearch.org

Debbie Zeldow, Executive Vice President
Office: (202) 293-2865, ext. 115
E-mail: dzeldow@agingresearch.org


The ALS Association
Media Relations
27001 Agoura Road, Suite 250
Calabasas Hills, CA 91301-5104
Phone: (818) 880-9007, ext. 241
E-Mail: mediarelations@alsa-national.org
Web Site: www.alsa.org


Alzheimer’s Association
225 North Michigan Avenue, 17th Floor
Chicago, IL 60601-7633
Phone: (312) 335-8700; (800) 272-3900
PR Department Phone: (312) 335-4078
PR Department Fax: (866) 720-0074
E-Mail: media@alz.org
Web Site: www.alz.org


American Autoimmune Related Diseases Association (Autoimmune Diseases Association)
22100 Gratiot Avenue
East Detroit, MI 48201
Phone: (586) 776-3900
Fax: (586) 776-3903
E-Mail: aarda@aarda.org
Web Site: www.aarda.org

Virginia Ladd


American Brain Tumor Association
2720 River Road
Suite 146
Des Plaines, Ill. 60018
Phone: (847) 827-9910
Fax: (847) 827-9918
Web site: www.abta.org

Sheryl Cash, Communications Manager
Office: (847) 827-9918, ext. 20
E-mail: scash@abta.org


American Cancer Society
National Home Office
250 Williams Street
Atlanta, GA 30303
Web Site: www.cancer.org

Atlanta Office
Becky Steinmark Erwin, National Director, Media Relations
Office: (404) 417-5860
Cell: (678) 613-6892
E-Mail: becky.erwin@cancer.org

Jamie Kimbrough, Director, Media Relations
Office: (404) 417-5889
Mobile: (404) 449-3008
E-Mail: jamie.kimbrough@cancer.org

Busola Afolabi, Manager, Media Relations
Office: (404) 417-5894
Mobile: (678) 458-0684
E-Mail: busola.afolabi@cancer.org

Claire Greenwell, Media Relations Specialist
Office: (404) 417-5883
Mobile: (678) 592-9517
E-Mail: claire.greenwell@cancer.org

New York Office
Andrew Becker, Director, Media Relations
Office: (212) 237-3899
Cell: (917) 673-7728
E-Mail: andrew.becker@cancer.org

Los Angeles Office
David Sampson, Director, Medical & Scientific Communications
Office: (213) 368-8523
Cell: (213) 840-7525
E-Mail: david.sampson@cancer.org

Advocacy, Washington, DC Office
Steve Weiss, Senior Director, Communications and Media
Office: (202) 661-5711
Cell: (202) 607-0911
E-Mail: steve.weiss@cancer.org

Alissa Havens, Senior Manager, Media Advocacy
Office:(202) 661-5772
Cell: (202) 905-1300
E-Mail: alissa.havens@cancer.org


American Diabetes Association
1701 North Beauregard Street
Alexandria, VA 22311
Phone: (703) 549-1500 or 800-DIABETES
Fax: (703) 549-6294
E-Mail: media@diabetes.org
Web Site: www.diabetes.org


American Heart Association
Corporate and Media Communications
7272 Greenville Avenue
Dallas, TX 75231
Phone: (214) 706-1396 or 800-AHA-USA-1
Fax: (214) 706-5243
Web Site: www.americanheart.org

Cathy Lewis, Senior Manager, Consumer Health News
E-Mail: cathy.lewis@heart.org

Julie Del Barto, Broadcast Media
Office: (214) 706-1330
E-Mail: julie.delbarto@heart.org

Darcy Spitz, New York Representative, National Media
Office: (212) 878-5940
Fax: (212) 878-5960
E-Mail: darcy.spitz@heart.org


American Kidney Fund
6110 Executive Boulevard, Suite 1010
Rockville, MD 20852
Phone: (301) 881-3052; (800) 638-8299
Fax: (301) 881-0898
Web Site: www.kidneyfund.org

Tamara Ruggiero, Vice President of Public Affairs
Office: (301) 984-6657
E-Mail: truggiero@kidneyfund.org


American Liver Foundation
75 Maiden Lane, Suite 603
New York, NY 10038
Phone: (212) 668-1000; (800) 465-4837
Fax: (212) 483-8179
E-Mail: info@liverfoundation.org
Web Site: www.liverfoundation.org


American Lung Association
1301 Pennsylvania Ave., N.W.
Washington, DC 20004
Phone: (202) 785-3355; (800) 586-4872
Web Site: www.lungusa.org

Catherine Sebold
Office: 202-715-3450
E-Mail: csebold@lungusa.org


American Parkinson Disease Association
135 Parkinson Avenue
Staten Island, NY 10305
Phone: (800) 223-2732; (718) 981-8001
Fax: (718) 981-4399
E-Mail: apda@apdaparkinson.org
Web Site: www.apdaparkinson.org


amfAR: The Foundation for AIDS Research
120 Wall Street, 13th Floor
New York, NY 10005-3908
Phone: (212) 806-1600
Fax: (212) 806-1601
Web Site: www.amfar.org

Cub Barrett, Manager, Program Communications
Office: (212) 806-1602
E-Mail: cub.barrett@amfar.org


Arthritis Foundation
National Office
1330 West Peachtree Street, N.W., Suite 100
Atlanta, GA 30309-2904
Phone: (404) 872-7100
Fax: (404) 872-8694
Web Site: www.arthritis.org

Ken Durden
Office: (404) 965-7802
E-Mail: kdurden@arthritis.org

Carol Galbreath
Office: (404) 965-7595
E-Mail: cgalbrea@arthritis.org


Asthma and Allergy Foundation of America
1233 20th Street, N.W., Suite 402
Washington, DC 20036
Phone: (202) 466-7643
Fax: (202) 466-8940
E-Mail: info@aafa.org
Web Site: www.aafa.org

Mike Tringale, M.S.M., Director of External Affairs
Office: (202) 466-7643, ext. 272
E-Mail: mike@aafa.org


Brain Injury Association of America
1608 Spring Hill Road, Suite 110
Vienna, VA 22182
Phone: (703) 761-0750; (800) 444-6443
Fax: (703) 761-0755
E-Mail: braininjuryinfo@biausa.org
Web Site: www.biausa.org


Cancer Research Institute
National Headquarters
One Exchange Plaza
55 Broadway, Suite 1802
New York, NY 10006
Phone: (212) 688-7515; (800) 992-2623
Fax: (212) 832-9376
E-mail: info@cancerresearch.org
Web Site: www.cancerresearch.org

Jill O'Donnell-Tormey, Ph.D., Executive Director


Crohn’s & Colitis Foundation of America
386 Park Avenue South, 17th Floor
New York, NY 10016
Phone: (800) 932-2423
Fax: (212) 779-4098
E-Mail: info@ccfa.org
Web Site: www.ccfa.org

Ariella Levine
Office: 646-943-7430
E-Mail: alevine@ccfa.org


Cystic Fibrosis Foundation
6931 Arlington Road, 2nd Floor
Bethesda, MD 20814
Phone: (301) 951-4422; (800) 344-4823
Fax: (301) 951-6378
E-Mail: info@cff.org
Web Site: www.cff.org

Laurie Fink, Director of Media Relations
Office: (301) 841-2602
E-Mail: lfink@cff.org


Depression and Bipolar Support Alliance (DBSA)
730 North Franklin Street, Suite 501
Chicago, IL 60654-7225
Phone: (312) 642-0049; (800) 826-3632
Fax: (312) 642-7243
E-Mail: media@dbsalliance.org
Web Site: www.dbsalliance.org


Easter Seals
233 South Wacker Drive, Suite 2400
Chicago, IL 60606
Phone: (800) 221-6827
Fax: (312) 726-1494
E-Mail: info@easterseals.com
Web Site: www.easterseals.com

Kristen Barnfield
Office: (312) 551-7147
E-Mail: kbarnfield@easterseals.com

Sara Brewster
Office: (312) 551-7141
E-Mail: sbrewster@easterseals.com


Epilepsy Foundation
8301 Professional Place
Landover, MD 20785-7223
Phone: (301) 459-3700; (800) 332-1000
Fax: (301) 918-2103
Web Site: www.epilepsyfoundation.org

Kimberli Meadows
Office: (301) 918-3747
Cell: (301) 520-6656
E-Mail: kmeadows@efa.org

Kisha James
Office: 301-918-3768
E-Mail: kjames@efa.org


First Candle / SIDS Alliance
1314 Bedford Avenue, Suite 210
Baltimore, MD 21208
Phone: (800) 221-7437; (410) 653-8226
E-Mail: info@firstcandle.org
Web Site: www.firstcandle.org

Laura L. Reno
Office: (313) 885-6095
Cell: (313) 268-5298
E-Mail: laura.reno@firstcandle.org


Foundation Fighting Blindness
11435 Cronhill Drive
Owings Mills, MD 21117-2220
Phone: (410) 568-0150; (800) 683-5555
Fax: (410) 363-2393
E-Mail: info@blindness.org
Web Site: www.FightBlindness.org

Angela Vasquez
Office: (410) 568-0152
E-Mail: avasquez@fightblindness.org


GBS/CIDP Foundation International — Guillain-Barré Syndrome/Chronic Inflammatory Demyelinating Polyneuropathy
The Holly Building
104 1/2 Forrest Avenue
Narberth, PA 19072
Phone: (610) 667-0131
Fax: (610) 667-7036
E-Mail: info@gbs-cidp.org
Web Site: www.gbs-cidp.org

Estelle Benson, Founding Director


Glaucoma Research Foundation
251 Post Avenue, Suite 600
San Francisco, CA 94108
Phone: (415) 986-3162; (800) 826-6693
Fax: (415) 986-3763
E-Mail: question@glaucoma.org
Web Site: www.glaucoma.org


Hepatitis Foundation International
504 Blick Drive
Silver Spring, MD 20904
Phone: (301) 622-4200
Fax: (301) 622-4702
Web Site: www.hepatitisfoundation.org

Thelma King Thiel, Chairman and CEO
Office: (301) 622-4200
Home: (301) 625-9076
E-Mail: TKT@comcast.net


Huntington’s Disease Society of America
505 Eighth Avenue, Suite 902
New York, NY 10018
Phone: (212) 242-1968; (800) 345-HDSA
Fax: (212) 239-3430
E-Mail: hdsainfo@hdsa.org
Web Site: www.hdsa.org

Louise Vetter, Chief Executive Officer
Office: (212) 242-1968, ext. 220
E-Mail: lvetter@hdsa.org

Fred Taubman, Director of Marketing Development and Communications
Office: (212) 242-1968, ext. 229
E-Mail: ftaubman@hdsa.org


The International Foundation for Research and Education on Depression
P.O. Box 17598
Baltimore, MD 21297-1598
Phone: 410-268-0044
Fax: 443-782-0739
E-Mail: info@ifred
Web Site: www.ifred.org


Interstitial Cystitis Association
100 Park Avenue, Suite 108A
Rockville, MD 20850
Phone: (301) 610-5300; (800) HELP-ICA
Fax: (301) 610-5308
E-Mail: icamail@ichelp.org
Web Site: www.ichelp.org


Juvenile Diabetes Research Foundation International
26 Broadway, 14th Floor
New York, NY 10004
Phone: (800) 533-2873
Fax: (212) 785-9595
Web Site: www.jdrf.org

Maria Joana Casas, National Manager of Media Relations
Office: (212) 479-7560
Cell: (917) 574-6122
Email: mcasas@jdrf.org


Kidney Cancer Association
1234 Sherman Avenue, Suite 203
Evanston, IL 60202-1375
Phone: (847) 332-1051
Fax: (847) 574-8102
Web Site: www. kidneycancer.org

William P. Bro
Office: (847) 332-1051, ext. 105
E-Mail: bbro@kidneycancer.org


The Leukemia & Lymphoma Society
1311 Mamaroneck Avenue
White Plains, NY 10605
Phone: (914) 949-5213
Fax: (914) 949-6691
Web Site: www.lls.org

Nancy Klein, Senior Vice President, Marketing Communications
Office: (914) 821-8812
E-Mail: nancy.klein@lls.org

Andrea Greif, Director, Public Relations
Office: (914) 821-8958
E-Mail: andrea.greif@lls.org


Lupus Foundation of America
2000 L Street, N.W., Suite 710
Washington, DC 20036
Phone: (202) 349-1155
Fax: (202) 349-1156
Web Site: www.lupus.org

Mary T. Crimmings, Vice President, Marketing, Communications and Advocacy
Phone: (202) 349-1149
E-Mail: crimmings@lupus.org

Duane Peters, Senior Director, Communications
Phone: (202) 349-1145
E-Mail: peters@lupus.org

Maggie Maloney, Senior Marketing and Communications Specialist
Phone: (202) 212-6766
E-Mail: maloney@lupus.org


March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: (914) 997-4488
Fax: (914) 997-4585
Web Site: www.marchofdimes.com

Michele Kling, Director, Media Relations
Office: (914) 997-4613
Cell: (914) 843-9487
E-Mail: mkling@marchofdimes.com

Elizabeth Lynch, Manager, Print Media Relations
Office: (914) 997-4286
Cell: (914) 953-1089
E-Mail: elynch@marchofdimes.org

Todd P. Dezen, Associate Director, Media Relations
Office: (914) 997-4608
Cell: (914) 843-1068
E-Mail: tdezen@marchofdimes.com


Mental Health America
2000 N. Beauregard Street, 6th Floor
Alexandria, VA 22311
Phone: (703) 684-7722; (800) 969-6642
TTY: (800) 433-5959
Fax: (703) 684-5968
E-Mail: mediainfo@mentalhealthamerica.net
Web Site: www.mentalhealthamerica.net

Steve Vetzener, Senior Director of Media Relations
Office: (703) 797-2588
E-Mail: svetzener@mentalhealthamerica.net


Muscular Dystrophy Association
3300 E. Sunrise Drive
Tucson, AZ 85718
Phone: (520) 529-2000; (800) 344-4863
Fax: (520) 529-5383
Web Site: www.mda.org; www.als-mda.org

Jim Brown
Office: (520) 529-5317
E-Mail: jbrown@mdausa.org


Myasthenia Gravis Foundation of America
355 Lexington Avenue, 15th Floor
New York, NY 10017
Phone: (212) 297-2156; (800) 541-5454
Fax: (212) 370-9047
E-Mail: mgfa@myasthenia.org
Web Site: www.myasthenia.org

Tor Holtan, Chief Executive Officer
E-Mail: tholtan@kellencompany.com


National Alliance on Mental Illness (NAMI)
3803 N. Fairfax Dr., Ste. 100
2107 Wilson Boulevard, Suite 300
Arlington, VA 22203
Phone: (703) 524-7600
Fax: (703) 524-9094
Web Site: www.nami.org

Christine Armstrong, Media Relations Associate
E-Mail: christinea@nami.org


The National Caucus and Center on Black Aged
1220 L Street, N.W., Suite 800
Washington, DC 20005
Phone: (202) 637-8400
Fax: (202) 347-0895
E-Mail: info@ncba-aged.org
Web Site: www.ncba-aged.org

Karyne Jones, President and CEO
Office: (202) 637-8400, ext. 111
E-Mail: kjones@ncba-aged.org


National Council on Aging
1901 L Street, N.W., 4th Floor
Washington, DC 20036
Phone: (202) 479-1200
Fax: (202) 479-0735
Web Site: www.ncoa.org

John Beilenson, Media Consultant
Office: (610) 687-5495
E-Mail: jbeilenson@aboutscp.com

Connie Hofmann, Media Consultant
Office: (610) 687-5495
E-mail: chofmann@aboutscp.com


National Down Syndrome Society
666 Broadway, 8th Floor
New York, NY 10012
Phone: (212) 763-4369; (800) 221-4602
Fax: (212) 979-2873
E-Mail: communications@ndss.org
Web Site: www.ndss.org


National Family Caregivers Association
10400 Connecticut Avenue, Suite 500
Kensington, MD 20895-3944
Phone: (301) 942-6430
Fax: (301) 942-2302
E-Mail: deborah.halpern@thefamilycaregiver.org
Web Site: www.thefamilycaregiver.org


National Foundation for Infectious Diseases
4733 Bethesda Avenue, Suite 750
Bethesda, MD 20814
Phone: (301) 656-0003
Fax: (301) 907-0878
E-Mail: info@nfid.org
Web Site: www.nfid.org

Leonard Novick, Executive Director
E-Mail: lnovick@nfid.org


National Health Council
1730 M Street, N.W., Suite 500
Washington, DC 20036
Phone: (202) 785-3910
Fax: (202) 785-5923
E-Mail: info@nhcouncil.org
Web Site: www.nationalhealthcouncil.org

Nancy Hughes
Phone: 202-973-0550
E-mail: nhughes@nhcouncil.org


National Hemophilia Foundation
116 West 32nd Street, 11th Floor
New York, NY 10001
Phone: (212) 328-3700
Fax: (212) 328-3777
E-Mail: handi@hemophilia.org
Web Site: www.hemophilia.org

John Indence, Vice President for Marketing & Communications


National Kidney Foundation
30 East 33rd Street
New York, NY 10016
Phone: (212) 889-2210; (800) 622-9010
Fax: (212) 689-9261
Web Site: www.kidney.org


National Multiple Sclerosis Society
733 Third Avenue
New York, NY 10017-3288
Phone: (212) 986-3240
Fax: (212) 986-7981
Web Site: www.nationalmssociety.org

Arney Rosenblat
Office: (212) 476-0436
E-Mail: arney.rosenblat@nmss.org


National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
P.O. Box 1968
Danbury, CT 06813-1968
Phone: (203) 744-0100
Fax: (203) 798-2291
E-Mail: orphan@rarediseases.org
Web Site: www.rarediseases.org

DC Office
1779 Massachusetts Avenue, Suite 500
Washington, DC 20036
Phone: (202) 588-5700
Fax: (202) 588-5701

Peter Saltonstall, President
E-Mail: psaltonstall@rarediseases.org

Maria Hardin, Vice President of Patient Services
E-Mail: mhardin@rarediseases.org

Mary Dunkle, Vice President of Communications
E-Mail: mdunkle@rarediseases.org

Diane Dorman, Vice President of Public Policy
E-Mail: ddorman@rarediseases.org

Michael Langan, Vice President of Industry Relations
E-Mail: mlangan@rarediseases.org


National Osteoporosis Foundation
1150 17th Street N.W., Suite 850
Washington, DC 20036
Phone: (202) 223-2226
Fax: (202) 223-2237
E-Mail: communications@nof.org
Web Site: www.nof.org


National Parkinson Foundation
1501 N.W. Ninth Avenue / Bob Hope Road
Miami, FL 33136-1494
Phone: (305) 243-6666; (800) 327-4545
Fax: (305) 243-6073
E-Mail: contact@parkinson.org
Web Site: www.parkinson.org

Leilani Pearl
Office: (305) 243-7951
E-Mail: lpearl@parkinson.org


National Prostate Cancer Coalition
10 G Street, NE, Suite 601
Washington, DC 20002
Phone: (202) 463-9455; (888) 245-9455
Fax: (571) 257-8559
E-Mail: info@zerocancer.org
Web Site: www.zerocancer.org

Jamie Bearse
E-Mail: jamie@zerocancer.org


National Psoriasis Foundation
6600 S.W. 92nd Avenue, Suite 300
Portland, OR 97223
Phone: (800) 723-9166
Fax: (503) 245-0626
E-Mail: getinfo@psoriasis.org
Web Site: www.psoriasis.org

Catie Coman, Director of Communications
Office: (503) 244-7404 ext. 367
E-Mail: ccoman@psoriasis.org


National Stroke Association
9707 E. Easter Lane
Englewood, CO 80112-3747
Phone: (303) 649-9299
Hotline: (800) 787-6537
Fax: (303) 649-1328
Web Site: www.stroke.org

Taryn Fort
Office: (303) 754-0919
Home: (720) 273-0927
E-Mail: tfort@stroke.org


The Paget Foundation for Paget’s Disease of Bone and Related Disorders
120 Wall Street, Suite 1602
New York, NY 10005-4001
Phone: (212) 509-5335
Fax: (212) 509-8492
E-Mail: pagetfdn@aol.com
Web Site: www.paget.org

Charlene Waldman, Executive Director


Parkinson’s Disease Foundation
1359 Broadway, Suite 1509
New York, NY 10018
Phone: (212) 923-4700; (800) 457-6676
Fax: (212) 923-4778
E-Mail: info@pdf.org
Web Site: www.pdf.org

Christiana Evers, Director of Communications
E-Mail: cevers@pdf.org


Prevent Blindness America
211 W. Wacker Drive, Suite 1700
Chicago, IL 60606
Phone: (312) 363-6001; (800) 331-2020
Fax: (312) 363-6052
E-Mail: info@preventblindness.org
Web Site: www.preventblindness.org

Andrea Densham, Vice President, Public Health and Government Affairs
Office: (312) 363-6032
Cell Phone: (773) 343-9916
E-Mail: adensham@preventblindness.org

Jeff Todd, Chief Operating Officer
Office: (312) 363-6026
E-Mail: jtodd@preventblindness.org


Pulmonary Hypertension Association
801 Roeder Road, Suite 400
Silver Spring, MD 20910
Phone: (301) 565-3004
Fax: (301) 565-3994
E-Mail: media@phassociation.org
Web Site: www.phassociation.org

Katherine Kroner
Phone: (301) 565-3004 ext. 749
E-Mail: katherine@phassociation.org


Sickle Cell Disease Association of America, Inc.
231 East Baltimore Street, Suite 800
Baltimore, MD 21202
Phone: (410) 528-1555; (800) 421-8453
Fax: (410) 528-1495
E-Mail: scdaa@sicklecelldisease.org
Web Site: www.sicklecelldisease.org


The Skin Cancer Foundation
149 Madison Avenue, Suite 901
New York, NY 10016
Phone: (212) 725-5176
Fax: (212) 725-5751
E-Mail: info@skincancer.org
Web Site: www.skincancer.org

Erin Mulvey, Director, Communications
Office: (212) 725-5176, ext. 106
E-Mail: emulvey@skincancer.org


Spina Bifida Association
4590 MacArthur Boulevard, N.W., Suite 250
Washington, DC 20007-4226
Phone: (202) 944-3285; (800) 621-3141
Fax: (202) 944-3295
E-Mail: sbaa@sbaa.org
Web Site: www.spinabifidaassociation.org


Tuberous Sclerosis Alliance
801 Roeder Road, Suite 750
Silver Spring, MD 20910
Phone: (301) 562-9890; (800) 225-6872
Fax: (301) 562-9870
E-Mail: info@tsalliance.org
Web Site: www.tsalliance.org

Jaye D. Isham
Office: (301) 562-9890
E-Mail: jisham@tsalliance.org


United Cerebral Palsy (UCP)
1660 L Street, N.W., Suite 700
Washington, DC 20036
Phone: (202) 776-0406
Fax: (202) 776-0414
E-Mail: info@ucp.org
Web Site: www.ucp.org

Lauren Cozzi
Office: (202) 973-7114
E-Mail: lcozzi@ucp.org