Reporter's Handbook
Volunteer Health Agencies
Allergy & Asthma Network Mothers of Asthmatics
2751 Prosperity Avenue, Suite 150
Fairfax, VA 22031
Phone (800) 878-4403
Fax (703) 573-7794
Web Site: www.aanma.org
Dawn Merritt
Office (800) 878-4403, ext. 109
E-Mail:
Alliance for Aging Research
2021 K Street, N.W., Suite 305
Washington, DC 20006
Phone (202) 293-2856
Fax (202) 785-8574
E-Mail:
Web Site: www.agingresearch.org
Debbie Zeldow, Senior Deputy Director
Office (202) 293-2865, ext. 115
E-mail:
Joan Hurwitz
E-Mail:
The ALS Association
Communications Office
27001 Agoura Road, Suite 150
Calabasas Hills, CA 91301-5104
Phone (818) 880-9007
E-Mail:
Web Site: www.alsa.org
Alzheimer’s Association
225 North Michigan Avenue, 17th Floor
Chicago, IL 60601-7633
Phone (312) 335-8700; (800) 272-3900
PR Department Phone (312) 335-4078
PR Department Fax (866) 720-0074
E-Mail:
Web Site: www.alz.org
American Autoimmune Related Diseases Association (Autoimmune Diseases Association)
22100 Gratiot Avenue
East Detroit, MI 48201
Phone (586) 776-3900
Fax (586) 776-3903
E-Mail:
Web Site: www.aarda.org
Virginia Ladd
American Cancer Society
1599 Clifton Road, N.E.
Atlanta, GA 30329
Web Site: www.cancer.org
Becky Steinmark, Director, Media Relations Atlanta
Office (404) 417-5860
Cell (678) 613-6892
E-Mail:
David Levine, Director, Media Relations New York
Office (212) 237-3884
Cell (917) 312-4839
E-Mail:
David Sampson, Director, Media Relations Los Angeles
Office (213) 368-8523
Cell (213) 840-7525
E-Mail:
Steve Weiss, Senior Director, Communications and Media Advocacy Washington, DC
Office (202) 661-5711
Cell (202) 607-0911
E-Mail:
Laura Bellinger, Manager, Media Relations Atlanta
Office (404) 417-5839
Cell (404) 964-3895
E-Mail:
Busola Afolabi, Media Relations Specialist Atlanta
Office (404) 417-5894
E-Mail:
American Diabetes Association
National Call Center
1701 North Beauregard Street
Alexandria, VA 22311
Phone (703) 549-1500
Fax (703) 549-6294
E-Mail:
Web Site: www.diabetes.org
American Heart Association
Corporate and Media Communications
7272 Greenville Avenue
Dallas, TX 75231
Phone (214) 706-1396
Fax (214) 706-5243
Web Site: www.americanheart.org
Cathy Lewis, Senior Manager, Consumer Health News
E-Mail:
Julie Del Barto, Broadcast Media
Office (214) 706-1330
E-Mail:
Darcy Spitz, New York Representative, National Media
Office (212) 878-5940
Fax (212) 878-5960
E-Mail:
American Kidney Fund
6110 Executive Boulevard, Suite 1010
Rockville, MD 20852
Phone (301) 881-3052; (800) 638-8299
Fax (301) 881-0898
Web Site: www.kidneyfund.org
Tamara Ruggiero, Director of Communications
Office (301) 984-6657
E-Mail:
American Liver Foundation
75 Maiden Lane, Suite 603
New York, NY 10038
Phone (212) 668-1000; (800) 465-4837
Fax (212) 483-8179
E-Mail:
Web Site: www.liverfoundation.org
Paul Gibney
Office (212) 668-1000, ext. 131
E-Mail:
American Lung Association
61 Broadway, 6th Floor
New York, NY 10006
Phone (212) 315-8700; (800) 586-4872
Web Site: www.lungusa.org
Hallema Sharif Clyburn, Director, Media Relations
Office (212) 315-8727
Diane Maple, Media Advocacy
Office (212) 785-3355
American Parkinson Disease Association
135 Parkinson Avenue
Staten Island, NY 10305
Phone (800) 223-2732; (718) 981-8001
Fax (718) 981-4399
E-Mail:
Web Site: www.apdaparkinson.org
amfAR: The Foundation for AIDS Research
120 Wall Street, 13th Floor
New York, NY 10005-3902
Phone (212) 806-1600
Fax (212) 806-1620
Web Site: www.amfar.org
Deborah C. Hernan, Vice President, Public Information
Office (212) 806-1744
E-Mail:
Donald Kaplan, Director, Program Communications, Public Information
Office (212) 806-1602
E-Mail:
Arthritis Foundation
National Office
1330 West Peachtree Street, N.W., Suite 100
Atlanta, GA 30309-2904
Phone (404) 872-7100
Fax (404) 872-8694
Web Site: www.arthritis.org
Barbara LeNoble
Office (404) 965-7594
E-Mail:
Ken Durden
Office (404) 965-7802
E-Mail:
Carol Galbreath
Office (404) 965-7595
E-Mail:
Asthma and Allergy Foundation of America
1233 20th Street, N.W., Suite 402
Washington, DC 20036
Phone (202) 466-7643
Fax (202) 466-8940
E-Mail:
Web Site: www.aafa.org
Mike Tringale, M.S.M., Director of External Affairs
Office (202) 466-7643, ext. 272
E-Mail:
Brain Injury Association of America
8201 Greensboro Drive, Suite 611
McLean, VA 22102
Phone (703) 761-0750
Fax (703) 761-0755
E-Mail:
Web Site: www.biausa.org
Crohn’s & Colitis Foundation of America
386 Park Avenue South, 17th Floor
New York, NY 10016
Phone (800) 932-2423
Fax (212) 779-4098
E-Mail:
Web Site: www.ccfa.org
Jeff Neale
Office (212) 685-3440 ext. 244
E-Mail:
Cystic Fibrosis Foundation
6931 Arlington Road, 2nd Floor
Bethesda, MD 20814
Phone (301) 951-4422; (800) 344-4823
Fax (301) 951-6378
E-Mail:
Web Site: www.cff.org
Laurie Fink, Director of Media Relations
Office (301) 841-2602
E-Mail:
Carolyn Habbersett, Director of Medical Communications
Office (301) 907-2542
E-Mail:
Depression and Bipolar Support Alliance (DBSA)
730 North Franklin Street, Suite 501
Chicago, IL 60610-7224
Phone (312) 642-0049; (800) 826-3632
Fax (312) 642-7243
E-Mail:
Web Site: www.dbsalliance.org
Keith Romero, Director of Communications
Office (312) 988-1174
E-Mail:
Easter Seals
230 W. Monroe Street, Suite 1800
Chicago, IL 60606
Phone (312) 551-7147; (800) 221-6827
Fax (312) 726-1494
E-Mail:
Web Site: www.easterseals.com
Kristen Barnfield
E-Mail:
Sara Brewster
E-Mail:
Epilepsy Foundation
8301 Professional Place
Landover, MD 20785-7223
Phone (301) 459-3700; (800) 332-1000
Fax (301) 577-2684
Web Site: www.epilepsyfoundation.org
Kimberli Meadows
Office (301) 918-3747
Cell (301) 520-6656
E-Mail:
Jonese Holloway
Office (301) 918-3768
E-Mail:
First Candle/SIDS Alliance
1314 Bedford Avenue, Suite 210
Baltimore, MD 21208
Phone (800) 221-7437; (410) 653-8226
E-Mail:
Web Site: www.firstcandle.org
Laura L. Reno
Office (313) 885-6095
Cell (313) 268-5298
E-Mail:
Foundation Fighting Blindness
11435 Cronhill Drive
Owings Mills, MD 21117-2220
Phone (410) 568-0150; (800) 683-5555
Fax (410) 363-2393
E-Mail:
Web Site: www.FightBlindness.org
Allie Laban-Baker
E-Mail:
GBS/CIDP Foundation International—
Guillain-Barré Syndrome/Chronic
Inflammatory Demyelinating
Polyneuropathy
The Holly Building
104 1/2 Forrest Avenue
Narberth, PA 19072
Phone (610) 667-0131
Fax (610) 667-7036
E-Mail:
Web Site: www.gbsfi.com
Estelle L. Benson, Executive Director
Barbara Katzman, Associate Director
E-Mail:
Glaucoma Research Foundation
251 Post Avenue, Suite 600
San Francisco, CA 94108
Phone (415) 986-3162; (800) 826-6693
Fax (415) 986-3763
E-Mail:
Web Site: www.glaucoma.org
Hepatitis Foundation International
504 Blick Drive
Silver Spring, MD 20904
Phone (301) 622-4200
Fax (301) 622-4702
Web Site: www.hepatitisfoundation.org
Thelma King Thiel, Chairman and CEO
Office (301) 622-4200
Home (301) 625-9076
E-Mail:
Huntington’s Disease Society of America
505 Eighth Avenue, Suite 902
New York, NY 10018
Fax (212) 239-3430
E-Mail:
Web Site: www.hdsa.org
Barbara T. Boyle, National Executive Director
Office (212) 242-1968, ext. 216
E-Mail:
Fred Taubman
Office (212) 242-1968, ext. 229
E-Mail:
Interstitial Cystitis Association
110 North Washington Street, Suite 340
Rockville, MD 20850
Phone (301) 610-5300; (800) HELP-ICA
Fax (301) 610-5308
E-Mail:
Web Site: www.ichelp.org
Juvenile Diabetes Research Foundation International
120 Wall Street, 19th Floor
New York, NY 10005-4001
Phone (212) 785-9500
Fax (212) 785-9595
Web Site: www.jdrf.org
Peter Cleary, National Director of Media Relations
Office (212) 479-7553
Cell (917) 574-6993
E-Mail:
Kidney Cancer Association
1234 Sherman Avenue, Suite 203
Evanston, IL 60202-1375
Phone (847) 332-1051
Fax (847) 332-2978
Web Site: www.curekidneycancer.org
William P. Bro (x-102)
E-Mail:
Leukemia & Lymphoma Society
1311 Mamaroneck Avenue
White Plains, NY 10605
Phone (914) 949-5213
Fax (914) 949-6691
Web Site: www.lls.org
Nancy Klein, Senior Vice President, Marketing Communications
Office (914) 821-8812
E-Mail:
Andrea Greif, Director, Public Relations
Office (914) 821-8958
E-Mail:
Lupus Foundation of America
2000 L Street, N.W., Suite 710
Washington, DC 20036
Phone (202) 349-1155
Fax (202) 349-1156
Web Site: www.lupus.org
Duane Peters
Office (202) 349-1145
E-Mail:
March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
Fax (914) 997-4585
Web Site: www.marchofdimes.com
Michele Kling, Director, Media Relations
Office (914) 997-4613
Cell (914) 843-9487
E-Mail:
Elizabeth Lynch, Manager, Newspaper Media Relations
Office (914) 997-4286
Cell (914) 953-1089
E-Mail:
Todd P. Dezen, Associate Director, Media Relations
Office (914) 997-4608
Cell (914) 843-1068
E-Mail:
Robert Storace, Manager, Magazine & Online Media Relations
Office (914) 997-4622
Cell (914) 843-1519
E-Mail:
Muscular Dystrophy Association
3300 E. Sunrise Drive
Tucson, AZ 85718
Phone (520) 529-2000; (800) 344-4863
Fax (520) 529-5383
Web Site: www.mda.org; www.als-mda.org
Bob Mackle
Office (520) 529-5317
E-Mail:
Myasthenia Gravis Foundation of America
1821 University Avenue, West, Suite S256
St. Paul, MN 55104
Phone (651) 917-6256; (800) 541-5454
Fax (651) 917-1835
E-Mail:
Web Site: www.myasthenia.org
Janet M. Golden, Chief Executive Officer
E-Mail:
National Alliance on Mental Illness (NAMI)
Colonial Place Three
2107 Wilson Boulevard, Suite 300
Arlington, VA 22201-3042
Phone (703) 524-7600
Fax (703) 516-7238
Web Site: www.nami.org
Alexis O’Brien, Media Relations Associate
Cell (202) 441-8764
E-Mail:
The National Caucus and Center on Black Aged
1220 L Street, N.W., Suite 800
Washington, DC 20005
Phone (202) 637-8400
Fax (202) 347-0895
E-Mail:
Web Site: www.ncba-aged.org
Karyne Jones, President and CEO
Office (202) 637-8400, ext. 111
E-Mail:
The National Council on the Aging
1901 L Street, N.W., 4th Floor
Washington, DC 20036
Phone (202) 479-1200
Fax (202) 479-0735
Web Site: www.ncoa.org
Scott Parkin, Vice President of Communications
Office (202) 479-6975
E-Mail:
National Down Syndrome Society
666 Broadway, 8th Floor
New York, NY 10012
Phone (212) 460-9330
Information and Referral Line (800) 221-4602
Fax (212) 979-2873
E-Mail:
Web Site: www.ndss.org
Theresa Renaldi, Media Relations Manager
Office (773) 989-3286
E-Mail:
National Family Caregivers Association
10400 Connecticut Avenue, Suite 500
Kensington, MD 20895-3944
Phone (800) 896-3650; (301) 942-6430
Fax (301) 942-2302
E-Mail:
Web Site: www.thefamilycaregiver.org
The National Foundation for Depressive Illness
P.O. Box 20061
New York, NY 10021-0061
Phone (212) 988-0912
Fax (212) 988-7666
Web Site: www.depression.org
Peter Ross
E-Mail:
National Foundation for Infectious Diseases
4733 Bethesda Avenue, Suite 750
Bethesda, MD 20814
Phone (301) 656-0003
Fax (301) 907-0878
E-Mail:
Web Site: www.nfid.org
Leonard Novick, Executive Director
E-Mail:
National Health Council
1730 M Street, N.W., Suite 500
Washington, DC 20036
Phone (202) 785-3910
Fax (202) 785-5923
E-Mail:
Web Site: www.nationalhealthcouncil.org
Kirk Rafdal
Office (202) 973-0550
E-Mail:
National Hemophilia Foundation
116 West 32nd Street, 11th Floor
New York, NY 10001
Phone (212) 328-3700
Fax (212) 328-3777
E-Mail:
Web Site: www.hemophilia.org
John Indence, Vice President for Marketing & Communications
National Kidney Foundation
30 East 33rd Street
New York, NY 10016
Phone (800) 622-9010; (212) 889-2210
Fax (212) 689-9261
Web Site: www.kidney.org
National Mental Health Association
2000 N. Beauregard Street, 6th Floor
Alexandria, VA 22311
Phone (703) 684-7722; (800) 969-6642
Fax (703) 684-5968
TTY (800) 433-5959
E-Mail:
Web Site: www.nmha.org
Heather Cobb, Senior Director of Media Relations
Office (703) 797-2588
E-Mail:
Eileen Sexton, Vice President of Media Relations
Office (703) 837-4783
E-Mail:
National Multiple Sclerosis Society
733 Third Avenue
New York, NY 10017-3288
Phone (212) 986-3240
Fax (212) 986-7981
Web Site: www.nationalmssociety.org
Arney Rosenblat
Office (212) 476-0436
E-Mail:
National Organization for Rare Disorders (NORD)
P.O. Box 1968
Danbury, CT 06813-1968
Phone (203) 744-0100
Fax (203) 798-2291
E-Mail:
Web Site: www.rarediseases.org
Abbey Meyers, President
E-Mail:
Maria Hardin, Vice President of Patient Services
E-Mail:
Mary Dunkle, Vice President of Communications
E-Mail:
Diane Dorman, Vice President of Public Policy
E-Mail:
National Osteoporosis Foundation
1232 22nd Street, N.W.
Washington, DC 20037-1292
Phone (202) 223-2226
Fax (202) 223-2237
E-Mail:
Web Site: www.nof.org
Molly Carey, Senior Communications Manager
E-Mail:
National Parkinson Foundation
1501 N.W. Ninth Avenue / Bob Hope Road
Miami, FL 33136-1494
Phone (800) 327-4545; (305) 243-6666
Fax (305) 243-5595
E-Mail:
Web Site: www.parkinson.org
Christie Lowey, rbb public relations
Office (305) 448-2930
E-Mail:
National Prostate Cancer Coalition
1154 15th Street, N.W.
Washington, DC 20005
Phone (202) 463-9455; (888) 245-9455
Fax (202) 463-9456
E-Mail:
E-Mail:
Web Site: www.fightprostatecancer.org
National Psoriasis Foundation
6600 S.W. 92nd Avenue, Suite 300
Portland, OR 97223
Phone (800) 723-9166
Fax (503) 245-0626
E-Mail:
Web Site: www.psoriasis.org
Paula Fasano, Marketing & Communications
Office (503) 546-8413
E-Mail:
Gail M. Zimmerman, President and CEO
Office (503) 546-8366
E-Mail:
National Stroke Association
9707 E. Easter Lane
Englewood, CO 80112-3747
Phone (303) 649-9299
Hotline (800) 787-6537
Fax (303) 649-1328
Web Site: www.stroke.org
Diane Mulligan-Fairfield
Office (303) 754-0920
Home (720) 273-0927
E-Mail:
The Paget Foundation for Paget’s Disease of Bone and Related Disorders
120 Wall Street, Suite 1602
New York, NY 10005-4001
Phone (212) 509-5335
Fax (212) 509-8492
E-Mail:
Web Site: www.paget.org
Charlene Waldman, Executive Director
Parkinson’s Disease Foundation
1359 Broadway, Suite 1509
New York, NY 10018
Phone (212) 923-4700; (800) 457-6676
Fax (212) 923-4778
E-Mail:
Web Site: www.pdf.org
Christiana Evers, Director of Communications
E-Mail:
Prevent Blindness America
211 W. Wacker Drive, Suite 1700
Chicago, IL 60606
Phone (312) 363-6001; (800) 331-2020
Fax (847) 363-6052
E-Mail:
Web Site: www.preventblindness.org
Jeff Todd, Vice President, Programs & Public Initiatives
Office (312) 363-6026
E-Mail:
Daniel D. Garrett, Senior Vice President
Office (312) 363-6032
E-Mail:
Pulmonary Hypertension Association
801 Roeder Road, Suite 400
Silver Spring, MD 20910
Phone (301) 565-3004
Fax (301) 565-3994
E-Mail:
Web Site: www.PHAssociation.org
Dayle Kern
Phone (301) 565-3004, ext. 113
Sickle Cell Disease Association of America
231 East Baltimore Street, Suite 800
Baltimore, MD 21202
Phone (410) 528-1555; (800) 421-8453
Fax (410) 528-1495
E-Mail:
Web Site: www.sicklecelldisease.org
Willarda V. Edwards, M.D., MBA, President/COO
E-Mail:
The Skin Cancer Foundation
149 Madison Avenue, Suite 901
New York, NY 10016
Phone (800) SKIN-490
Fax (212) 725-5751
E-Mail:
Web Site: www.skincancer.org
Erin Mulvey, Director, Communications
Office (212) 725-5176, ext. 106
E-Mail:
Spina Bifida Association
4590 MacArthur Boulevard, N.W., Suite 250
Washington, DC 20007-4226
Phone (202) 944-3285; (800) 621-3141
Fax (202) 944-3295
E-Mail:
Web Site: www.sbaa.org
Tuberous Sclerosis Alliance
801 Roeder Road, Suite 750
Silver Spring, MD 20910
Phone (800) 225-6872; (301) 562-9890
Fax (301) 562-9870
E-Mail:
Web Site: www.tsalliance.org
Jaye D. Isham
Office (301) 562-9890
E-Mail:
United Cerebral Palsy (UCP)
1660 L Street, N.W., Suite 700
Washington, DC 20036
Phone (202) 776-0406
Fax (202) 776-0414
E-Mail:
Web Site: www.ucp.org
Marcia Jones
Office (202) 973-7104
E-Mail:
Elizabeth Reitz
Office (202) 973-7114
E-Mail:
Allergy & Asthma Network Mothers of Asthmatics
2751 Prosperity Avenue, Suite 150
Fairfax, VA 22031
Phone (800) 878-4403
Fax (703) 573-7794
Web Site: www.aanma.org
Dawn Merritt
Office (800) 878-4403, ext. 109
E-Mail:
Alliance for Aging Research
2021 K Street, N.W., Suite 305
Washington, DC 20006
Phone (202) 293-2856
Fax (202) 785-8574
E-Mail:
Web Site: www.agingresearch.org
Debbie Zeldow, Senior Deputy Director
Office (202) 293-2865, ext. 115
E-mail:
Joan Hurwitz
E-Mail:
The ALS Association
Communications Office
27001 Agoura Road, Suite 150
Calabasas Hills, CA 91301-5104
Phone (818) 880-9007
E-Mail:
Web Site: www.alsa.org
Alzheimer’s Association
225 North Michigan Avenue, 17th Floor
Chicago, IL 60601-7633
Phone (312) 335-8700; (800) 272-3900
PR Department Phone (312) 335-4078
PR Department Fax (866) 720-0074
E-Mail:
Web Site: www.alz.org
American Autoimmune Related Diseases Association (Autoimmune Diseases Association)
22100 Gratiot Avenue
East Detroit, MI 48201
Phone (586) 776-3900
Fax (586) 776-3903
E-Mail:
Web Site: www.aarda.org
Virginia Ladd
American Cancer Society
1599 Clifton Road, N.E.
Atlanta, GA 30329
Web Site: www.cancer.org
Becky Steinmark, Director, Media Relations Atlanta
Office (404) 417-5860
Cell (678) 613-6892
E-Mail:
David Levine, Director, Media Relations New York
Office (212) 237-3884
Cell (917) 312-4839
E-Mail:
David Sampson, Director, Media Relations Los Angeles
Office (213) 368-8523
Cell (213) 840-7525
E-Mail:
Steve Weiss, Senior Director, Communications and Media Advocacy Washington, DC
Office (202) 661-5711
Cell (202) 607-0911
E-Mail:
Laura Bellinger, Manager, Media Relations Atlanta
Office (404) 417-5839
Cell (404) 964-3895
E-Mail:
Busola Afolabi, Media Relations Specialist Atlanta
Office (404) 417-5894
E-Mail:
American Diabetes Association
National Call Center
1701 North Beauregard Street
Alexandria, VA 22311
Phone (703) 549-1500
Fax (703) 549-6294
E-Mail:
Web Site: www.diabetes.org
American Heart Association
Corporate and Media Communications
7272 Greenville Avenue
Dallas, TX 75231
Phone (214) 706-1396
Fax (214) 706-5243
Web Site: www.americanheart.org
Cathy Lewis, Senior Manager, Consumer Health News
E-Mail:
Julie Del Barto, Broadcast Media
Office (214) 706-1330
E-Mail:
Darcy Spitz, New York Representative, National Media
Office (212) 878-5940
Fax (212) 878-5960
E-Mail:
American Kidney Fund
6110 Executive Boulevard, Suite 1010
Rockville, MD 20852
Phone (301) 881-3052; (800) 638-8299
Fax (301) 881-0898
Web Site: www.kidneyfund.org
Tamara Ruggiero, Director of Communications
Office (301) 984-6657
E-Mail:
American Liver Foundation
75 Maiden Lane, Suite 603
New York, NY 10038
Phone (212) 668-1000; (800) 465-4837
Fax (212) 483-8179
E-Mail:
Web Site: www.liverfoundation.org
Paul Gibney
Office (212) 668-1000, ext. 131
E-Mail:
American Lung Association
61 Broadway, 6th Floor
New York, NY 10006
Phone (212) 315-8700; (800) 586-4872
Web Site: www.lungusa.org
Hallema Sharif Clyburn, Director, Media Relations
Office (212) 315-8727
Diane Maple, Media Advocacy
Office (212) 785-3355
American Parkinson Disease Association
135 Parkinson Avenue
Staten Island, NY 10305
Phone (800) 223-2732; (718) 981-8001
Fax (718) 981-4399
E-Mail:
Web Site: www.apdaparkinson.org
amfAR: The Foundation for AIDS Research
120 Wall Street, 13th Floor
New York, NY 10005-3902
Phone (212) 806-1600
Fax (212) 806-1620
Web Site: www.amfar.org
Deborah C. Hernan, Vice President, Public Information
Office (212) 806-1744
E-Mail:
Donald Kaplan, Director, Program Communications, Public Information
Office (212) 806-1602
E-Mail:
Arthritis Foundation
National Office
1330 West Peachtree Street, N.W., Suite 100
Atlanta, GA 30309-2904
Phone (404) 872-7100
Fax (404) 872-8694
Web Site: www.arthritis.org
Barbara LeNoble
Office (404) 965-7594
E-Mail:
Ken Durden
Office (404) 965-7802
E-Mail:
Carol Galbreath
Office (404) 965-7595
E-Mail:
Asthma and Allergy Foundation of America
1233 20th Street, N.W., Suite 402
Washington, DC 20036
Phone (202) 466-7643
Fax (202) 466-8940
E-Mail:
Web Site: www.aafa.org
Mike Tringale, M.S.M., Director of External Affairs
Office (202) 466-7643, ext. 272
E-Mail:
Brain Injury Association of America
8201 Greensboro Drive, Suite 611
McLean, VA 22102
Phone (703) 761-0750
Fax (703) 761-0755
E-Mail:
Web Site: www.biausa.org
Crohn’s & Colitis Foundation of America
386 Park Avenue South, 17th Floor
New York, NY 10016
Phone (800) 932-2423
Fax (212) 779-4098
E-Mail:
Web Site: www.ccfa.org
Jeff Neale
Office (212) 685-3440 ext. 244
E-Mail:
Cystic Fibrosis Foundation
6931 Arlington Road, 2nd Floor
Bethesda, MD 20814
Phone (301) 951-4422; (800) 344-4823
Fax (301) 951-6378
E-Mail:
Web Site: www.cff.org
Laurie Fink, Director of Media Relations
Office (301) 841-2602
E-Mail:
Carolyn Habbersett, Director of Medical Communications
Office (301) 907-2542
E-Mail:
Depression and Bipolar Support Alliance (DBSA)
730 North Franklin Street, Suite 501
Chicago, IL 60610-7224
Phone (312) 642-0049; (800) 826-3632
Fax (312) 642-7243
E-Mail:
Web Site: www.dbsalliance.org
Keith Romero, Director of Communications
Office (312) 988-1174
E-Mail:
Easter Seals
230 W. Monroe Street, Suite 1800
Chicago, IL 60606
Phone (312) 551-7147; (800) 221-6827
Fax (312) 726-1494
E-Mail:
Web Site: www.easterseals.com
Kristen Barnfield
E-Mail:
Sara Brewster
E-Mail:
Epilepsy Foundation
8301 Professional Place
Landover, MD 20785-7223
Phone (301) 459-3700; (800) 332-1000
Fax (301) 577-2684
Web Site: www.epilepsyfoundation.org
Kimberli Meadows
Office (301) 918-3747
Cell (301) 520-6656
E-Mail:
Jonese Holloway
Office (301) 918-3768
E-Mail:
First Candle/SIDS Alliance
1314 Bedford Avenue, Suite 210
Baltimore, MD 21208
Phone (800) 221-7437; (410) 653-8226
E-Mail:
Web Site: www.firstcandle.org
Laura L. Reno
Office (313) 885-6095
Cell (313) 268-5298
E-Mail:
Foundation Fighting Blindness
11435 Cronhill Drive
Owings Mills, MD 21117-2220
Phone (410) 568-0150; (800) 683-5555
Fax (410) 363-2393
E-Mail:
Web Site: www.FightBlindness.org
Allie Laban-Baker
E-Mail:
GBS/CIDP Foundation International—
Guillain-Barré Syndrome/Chronic
Inflammatory Demyelinating
Polyneuropathy
The Holly Building
104 1/2 Forrest Avenue
Narberth, PA 19072
Phone (610) 667-0131
Fax (610) 667-7036
E-Mail:
Web Site: www.gbsfi.com
Estelle L. Benson, Executive Director
Barbara Katzman, Associate Director
E-Mail:
Glaucoma Research Foundation
251 Post Avenue, Suite 600
San Francisco, CA 94108
Phone (415) 986-3162; (800) 826-6693
Fax (415) 986-3763
E-Mail:
Web Site: www.glaucoma.org
Hepatitis Foundation International
504 Blick Drive
Silver Spring, MD 20904
Phone (301) 622-4200
Fax (301) 622-4702
Web Site: www.hepatitisfoundation.org
Thelma King Thiel, Chairman and CEO
Office (301) 622-4200
Home (301) 625-9076
E-Mail:
Huntington’s Disease Society of America
505 Eighth Avenue, Suite 902
New York, NY 10018
Fax (212) 239-3430
E-Mail:
Web Site: www.hdsa.org
Barbara T. Boyle, National Executive Director
Office (212) 242-1968, ext. 216
E-Mail:
Fred Taubman
Office (212) 242-1968, ext. 229
E-Mail:
Interstitial Cystitis Association
110 North Washington Street, Suite 340
Rockville, MD 20850
Phone (301) 610-5300; (800) HELP-ICA
Fax (301) 610-5308
E-Mail:
Web Site: www.ichelp.org
Juvenile Diabetes Research Foundation International
120 Wall Street, 19th Floor
New York, NY 10005-4001
Phone (212) 785-9500
Fax (212) 785-9595
Web Site: www.jdrf.org
Peter Cleary, National Director of Media Relations
Office (212) 479-7553
Cell (917) 574-6993
E-Mail:
Kidney Cancer Association
1234 Sherman Avenue, Suite 203
Evanston, IL 60202-1375
Phone (847) 332-1051
Fax (847) 332-2978
Web Site: www.curekidneycancer.org
William P. Bro (x-102)
E-Mail:
Leukemia & Lymphoma Society
1311 Mamaroneck Avenue
White Plains, NY 10605
Phone (914) 949-5213
Fax (914) 949-6691
Web Site: www.lls.org
Nancy Klein, Senior Vice President, Marketing Communications
Office (914) 821-8812
E-Mail:
Andrea Greif, Director, Public Relations
Office (914) 821-8958
E-Mail:
Lupus Foundation of America
2000 L Street, N.W., Suite 710
Washington, DC 20036
Phone (202) 349-1155
Fax (202) 349-1156
Web Site: www.lupus.org
Duane Peters
Office (202) 349-1145
E-Mail:
March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
Fax (914) 997-4585
Web Site: www.marchofdimes.com
Michele Kling, Director, Media Relations
Office (914) 997-4613
Cell (914) 843-9487
E-Mail:
Elizabeth Lynch, Manager, Newspaper Media Relations
Office (914) 997-4286
Cell (914) 953-1089
E-Mail:
Todd P. Dezen, Associate Director, Media Relations
Office (914) 997-4608
Cell (914) 843-1068
E-Mail:
Robert Storace, Manager, Magazine & Online Media Relations
Office (914) 997-4622
Cell (914) 843-1519
E-Mail:
Muscular Dystrophy Association
3300 E. Sunrise Drive
Tucson, AZ 85718
Phone (520) 529-2000; (800) 344-4863
Fax (520) 529-5383
Web Site: www.mda.org; www.als-mda.org
Bob Mackle
Office (520) 529-5317
E-Mail:
Myasthenia Gravis Foundation of America
1821 University Avenue, West, Suite S256
St. Paul, MN 55104
Phone (651) 917-6256; (800) 541-5454
Fax (651) 917-1835
E-Mail:
Web Site: www.myasthenia.org
Janet M. Golden, Chief Executive Officer
E-Mail:
National Alliance on Mental Illness (NAMI)
Colonial Place Three
2107 Wilson Boulevard, Suite 300
Arlington, VA 22201-3042
Phone (703) 524-7600
Fax (703) 516-7238
Web Site: www.nami.org
Alexis O’Brien, Media Relations Associate
Cell (202) 441-8764
E-Mail:
The National Caucus and Center on Black Aged
1220 L Street, N.W., Suite 800
Washington, DC 20005
Phone (202) 637-8400
Fax (202) 347-0895
E-Mail:
Web Site: www.ncba-aged.org
Karyne Jones, President and CEO
Office (202) 637-8400, ext. 111
E-Mail:
The National Council on the Aging
1901 L Street, N.W., 4th Floor
Washington, DC 20036
Phone (202) 479-1200
Fax (202) 479-0735
Web Site: www.ncoa.org
Scott Parkin, Vice President of Communications
Office (202) 479-6975
E-Mail:
National Down Syndrome Society
666 Broadway, 8th Floor
New York, NY 10012
Phone (212) 460-9330
Information and Referral Line (800) 221-4602
Fax (212) 979-2873
E-Mail:
Web Site: www.ndss.org
Theresa Renaldi, Media Relations Manager
Office (773) 989-3286
E-Mail:
National Family Caregivers Association
10400 Connecticut Avenue, Suite 500
Kensington, MD 20895-3944
Phone (800) 896-3650; (301) 942-6430
Fax (301) 942-2302
E-Mail:
Web Site: www.thefamilycaregiver.org
The National Foundation for Depressive Illness
P.O. Box 20061
New York, NY 10021-0061
Phone (212) 988-0912
Fax (212) 988-7666
Web Site: www.depression.org
Peter Ross
E-Mail:
National Foundation for Infectious Diseases
4733 Bethesda Avenue, Suite 750
Bethesda, MD 20814
Phone (301) 656-0003
Fax (301) 907-0878
E-Mail:
Web Site: www.nfid.org
Leonard Novick, Executive Director
E-Mail:
National Health Council
1730 M Street, N.W., Suite 500
Washington, DC 20036
Phone (202) 785-3910
Fax (202) 785-5923
E-Mail:
Web Site: www.nationalhealthcouncil.org
Kirk Rafdal
Office (202) 973-0550
E-Mail:
National Hemophilia Foundation
116 West 32nd Street, 11th Floor
New York, NY 10001
Phone (212) 328-3700
Fax (212) 328-3777
E-Mail:
Web Site: www.hemophilia.org
John Indence, Vice President for Marketing & Communications
National Kidney Foundation
30 East 33rd Street
New York, NY 10016
Phone (800) 622-9010; (212) 889-2210
Fax (212) 689-9261
Web Site: www.kidney.org
National Mental Health Association
2000 N. Beauregard Street, 6th Floor
Alexandria, VA 22311
Phone (703) 684-7722; (800) 969-6642
Fax (703) 684-5968
TTY (800) 433-5959
E-Mail:
Web Site: www.nmha.org
Heather Cobb, Senior Director of Media Relations
Office (703) 797-2588
E-Mail:
Eileen Sexton, Vice President of Media Relations
Office (703) 837-4783
E-Mail:
National Multiple Sclerosis Society
733 Third Avenue
New York, NY 10017-3288
Phone (212) 986-3240
Fax (212) 986-7981
Web Site: www.nationalmssociety.org
Arney Rosenblat
Office (212) 476-0436
E-Mail:
National Organization for Rare Disorders (NORD)
P.O. Box 1968
Danbury, CT 06813-1968
Phone (203) 744-0100
Fax (203) 798-2291
E-Mail:
Web Site: www.rarediseases.org
Abbey Meyers, President
E-Mail:
Maria Hardin, Vice President of Patient Services
E-Mail:
Mary Dunkle, Vice President of Communications
E-Mail:
Diane Dorman, Vice President of Public Policy
E-Mail:
National Osteoporosis Foundation
1232 22nd Street, N.W.
Washington, DC 20037-1292
Phone (202) 223-2226
Fax (202) 223-2237
E-Mail:
Web Site: www.nof.org
Molly Carey, Senior Communications Manager
E-Mail:
National Parkinson Foundation
1501 N.W. Ninth Avenue / Bob Hope Road
Miami, FL 33136-1494
Phone (800) 327-4545; (305) 243-6666
Fax (305) 243-5595
E-Mail:
Web Site: www.parkinson.org
Christie Lowey, rbb public relations
Office (305) 448-2930
E-Mail:
National Prostate Cancer Coalition
1154 15th Street, N.W.
Washington, DC 20005
Phone (202) 463-9455; (888) 245-9455
Fax (202) 463-9456
E-Mail:
E-Mail:
Web Site: www.fightprostatecancer.org
National Psoriasis Foundation
6600 S.W. 92nd Avenue, Suite 300
Portland, OR 97223
Phone (800) 723-9166
Fax (503) 245-0626
E-Mail:
Web Site: www.psoriasis.org
Paula Fasano, Marketing & Communications
Office (503) 546-8413
E-Mail:
Gail M. Zimmerman, President and CEO
Office (503) 546-8366
E-Mail:
National Stroke Association
9707 E. Easter Lane
Englewood, CO 80112-3747
Phone (303) 649-9299
Hotline (800) 787-6537
Fax (303) 649-1328
Web Site: www.stroke.org
Diane Mulligan-Fairfield
Office (303) 754-0920
Home (720) 273-0927
E-Mail:
The Paget Foundation for Paget’s Disease of Bone and Related Disorders
120 Wall Street, Suite 1602
New York, NY 10005-4001
Phone (212) 509-5335
Fax (212) 509-8492
E-Mail:
Web Site: www.paget.org
Charlene Waldman, Executive Director
Parkinson’s Disease Foundation
1359 Broadway, Suite 1509
New York, NY 10018
Phone (212) 923-4700; (800) 457-6676
Fax (212) 923-4778
E-Mail:
Web Site: www.pdf.org
Christiana Evers, Director of Communications
E-Mail:
Prevent Blindness America
211 W. Wacker Drive, Suite 1700
Chicago, IL 60606
Phone (312) 363-6001; (800) 331-2020
Fax (847) 363-6052
E-Mail:
Web Site: www.preventblindness.org
Jeff Todd, Vice President, Programs & Public Initiatives
Office (312) 363-6026
E-Mail:
Daniel D. Garrett, Senior Vice President
Office (312) 363-6032
E-Mail:
Pulmonary Hypertension Association
801 Roeder Road, Suite 400
Silver Spring, MD 20910
Phone (301) 565-3004
Fax (301) 565-3994
E-Mail:
Web Site: www.PHAssociation.org
Dayle Kern
Phone (301) 565-3004, ext. 113
Sickle Cell Disease Association of America
231 East Baltimore Street, Suite 800
Baltimore, MD 21202
Phone (410) 528-1555; (800) 421-8453
Fax (410) 528-1495
E-Mail:
Web Site: www.sicklecelldisease.org
Willarda V. Edwards, M.D., MBA, President/COO
E-Mail:
The Skin Cancer Foundation
149 Madison Avenue, Suite 901
New York, NY 10016
Phone (800) SKIN-490
Fax (212) 725-5751
E-Mail:
Web Site: www.skincancer.org
Erin Mulvey, Director, Communications
Office (212) 725-5176, ext. 106
E-Mail:
Spina Bifida Association
4590 MacArthur Boulevard, N.W., Suite 250
Washington, DC 20007-4226
Phone (202) 944-3285; (800) 621-3141
Fax (202) 944-3295
E-Mail:
Web Site: www.sbaa.org
Tuberous Sclerosis Alliance
801 Roeder Road, Suite 750
Silver Spring, MD 20910
Phone (800) 225-6872; (301) 562-9890
Fax (301) 562-9870
E-Mail:
Web Site: www.tsalliance.org
Jaye D. Isham
Office (301) 562-9890
E-Mail:
United Cerebral Palsy (UCP)
1660 L Street, N.W., Suite 700
Washington, DC 20036
Phone (202) 776-0406
Fax (202) 776-0414
E-Mail:
Web Site: www.ucp.org
Marcia Jones
Office (202) 973-7104
E-Mail:
Elizabeth Reitz
Office (202) 973-7114
E-Mail: