Sara Weir

National Down Syndrome Society

Sara Hart Weir, MS, was appointed as the National Down Syndrome Society (NDSS) President in December 2014, after previously serving as the Vice President of Advocacy & Affiliate Relations for NDSS since 2012. Weir is responsible for overseeing the mission and administration of the organization, which is the largest nonprofit in the United States dedicated to advocating for people with Down syndrome and their families.

Under Weir’s leadership, NDSS was at the forefront of the passage of the landmark and historical Stephen Beck Jr. Achieving a Better Life Experience (ABLE) Act, which will create tax free savings accounts for people with Down syndrome and other disabilities. This significant law is hailed as the most significant legislation for the disability community since the Americans with Disabilities Act (ADA), over twenty-five years ago. For Weir, the advocacy surrounding the ABLE Act was a civil rights issue, as for the first-time ever, it puts a stake in the ground that individuals with disabilities can save money for the future, work, all while remaining on the necessary benefits that the Down syndrome community relies on.

In 2013, Weir was appointed to a three-year term to the Maryland Commission for Effective Community Inclusion of Individuals with Intellectual and Developmental Disabilities by Governor Martin O’Malley. Weir currently serves on the Board of Trustees for Westminster College, President of the Westminster College Alumni Council, and on the National Task Group on Intellectual Disabilities and Dementia. In August, Weir gave the 2014 Convocation Address at her alma mater, Westminster College, discussing her passion for NDSS and advocating for people with Down syndrome and their families.

Prior to joining NDSS, Weir was a Vice President at Faegre BD Consulting and worked for an international pharmaceutical company in Washington, DC. Prior to coming to Washington, Weir worked for a Congressman from Kansas. Ms. Weir has a Bachelor of Arts in Psychology and Political Leadership from Westminster College (Fulton, Missouri) and a Master of Science in Public Policy and Management from Carnegie Mellon University’s Heinz College. Weir has earned many honors including; the Westminster College Senior of the Year, the Winston Churchill Award for Leadership and Service, and Coca-Cola Community All-American. Most recently, Weir was the recipient of the 2014 Westminster College Young Alumni Achievement Award.

Weir's passion of advocating for all people with Down syndrome and their families stems from her friendship with a young woman from Kansas, Kasey, who happens to have Down syndrome. Sara first served as a mentor to Kasey over a decade ago.