Durhane Wong-Rieger

President, Canadian Organization for Rare Disorders

Durhane Wong-Rieger, PHD is the founder and head of the Consumer Advocare Network, a national network to provide a common voice for patients organizations. She is President of the Canadian Organization for Rare Disorders, President and CEO of the Institute for Optimizing Health Outcomes and past Chair of the International Alliance of Patients’ Organizations. She is a licensed Master Trainer with the Stanford-based Living A Healthy Life with Chronic Conditions.

Dr. Wong-Rieger has served on numerous health policy advisory committees and panels, including Project Coordinator for the Policy Dialogues for the Romanow Commission on the Future of Healthcare in Canada and consultant to the Ontario Premier’s Advisory Board on Organ Donation.

As president of the Canadian Hemophilia Society, she advocated on behalf of consumers infected through Canada’s tainted blood system. She was the consumer representative on the federal/provincial/territorial committee to establish an independent blood agency and was named to the Board of Directors as well as the National Blood Safety Council.

From 1984 to 1999, Durhane was professor of psychology at the University of Windsor in Ontario, Canada. Durhane has a BA in psychology from Barnard College in New York City and an MA and PhD in social psychology from McGill University in Montreal. She is author of two books and many articles and a frequent lecturer and workshop leader.

Durhane is married with two children, each with a rare health condition.